I have been waiting a long time to share this news and it has finally come to the time when I can share. Ever since we arrived home from the NICU last September, I have been fighting to get assistance for Jackson from our wonderful government. I applied for special health care and was denied. I applied for Social Security for Jackson and got laughed at. I applied for Medicaid and was denied, with out them telling me there was more to there system that I could apply for due to Jackson's medical conditions. So last January we got ourselves a social worker that knew the system and could let us know which areas to try and which services to stay away from. She has been wonderful. I can't imagine what we would have done without her. Needless to say this has almost been a 15 month process of one denial after another. God knew what he was doing when he gave me this to deal with. He knew I had tough skin and a determination beyond words, both which have been very useful. I have to say there have been may moments of frustration where I have truely wanted to give up, and someone has stepped in to encourage me right at the exact moment it was needed. God promises that he will help you in times of need right?
We to make a long story short. we were ACCEPTED TODAY. for a medicaid waiver program that will give us regular medicaid that will pay for all of Jackson's medical bills and copays for all appointments and medications. It also pays for me to have a nurse watch him for 60 hours a month and if we would need it they would pay for private daycare for me to go back to work and know that Jackson is in great and trained care in his own home. There is more...I just don't know all the details.
I can't tell you what a relief this is with things in the future still looming over our head. I pray daily that the worst will still not happen. However now if it does we are covered finacially and won't have that additional stress during times when we will need to be worrying about other things. God is good. He has never stopped protecting us and providing for us. Isn't great that we have a Father that is so Faithful.
You can really get down about the little things like your child not sleeping through the night, not eating as much as they need to, not progressing the way they should and it is Truely a Happy moment when this news is brought to you in the midst of all of that. God knows when we need a little pick me up and I got mine today.
thanks for all the prayers during this process and all the support that you all have sent. We can know make that last a long time paying for trips to Indy. God has done wonderful things with Gas prices too...I can take my trip next week to indy for less than a hundred dollars...I can't wait. Have a Happy Thanksgiving and remember that their are always little things to be thankful for...and every now and again we get to Rejoice in the BIG ONES TOO.