Friday, October 31, 2008
Monday, October 27, 2008
Sunday, October 26, 2008
we are home and adjusting quickly. I was amazed last night that Jackson did as well as he did. We woke up every four hours for Tylenol and then went right back to sleep. Exactly like clockwork. I have to say the highlight to my day yesterday was when Adrian had Jackson looking out the window and he grabbed the curtain and started playing peek a boo. It brought a smile right to my face. He still knows how to light up a room. He is still mighty uncomfortable, but we are adjusting and his gas has started to come out with poop...so I think we are on the up swing. We will see, time will tell.
Our friends have been great. Already calling and setting up there slot to come and visit. Remember guys this is a 6 week ordeal So we can spread it out some. Thank you all for your offers of help and keeping your phone lines open if I need you. It gives me great relief to know people are out there for me if times get rough. We also think that Adrian will be in town the entire 6 weeks which is awesome and somewhat of a miracle this time of year.
This is just a quick note...as we have lots of moving of furniture to do today and putting toys away and getting new ones out that are more suitable. Tomorrow I will post some pictures today we are just adjusting.
thanks for the continued prayers of healing.
Friday, October 24, 2008
he is sleeping peacefully right now on the floor propped with pillow for comfort. it is actually quite comfy looking. he started to talk a little tonight once we got to Conrad and Jenna's too. I think he just likes his aunt and uncle and something looked familiar.
We will stay here until he is holding down food consistently and we are still waiting for a big blow out. Til then pray for these things. We could use God's help with all of this. Especially keeping the cast clean during this puking and pooping blow out/diarrhea stuff.
Thank you all for the encouragement and prayers. We appreciate them all.
Thursday, October 23, 2008
He claims we are going to be discharged sometime tomorrow. :) I am happy to not be here but wow...24 hours and then were out..seems kinda fast. But for those of you that have met Dr Lubicky you know that he is pretty flip. SO getting straight answers is difficult. He gave little indication to when the next one would be other than saying that we would rehab this leg a while before being in another cast for 6 weeks.
This cast is fiberglass and sticks straight out...so it will be difficult to maneuver but a heck of alot lighter to carry than plaster. I guess by the end of this 6 weeks we will pros for the second 6 weeks of the cast. The doc egged me on by saying there was a prize for the cleanest cast. We will try cuz the smell with my heightened senses, will be replusive if I don't keep it clean. I will need God's help with all of this that is for sure. For those of you who think I am a patient person (ashley)...this will be the true test.
Thanks for all of your prayers and encouragement. We appreciate it all.
Wednesday, October 22, 2008
and it is so sweet to watch you child live life oblivious to what life has handed him. Jackson and I have spent the day doing laundry, packing, cleaning and running last minute errands...and he thinks it is a normal day. He has no idea what is in store for him. We sat down and tried to have a talk about it, but he wanted nothing to do with what I had to say. either he knows it is going to be just fine, or he doesn't have a clue what I am saying to him.
this past weekend we got sometime to hang out with friends, take pictures, watch some football and enjoy the beautiful fall weather. it started Thursday when I found out they had lost our outfits I had ordered for our pictures. I flipped...I had this planned for two weeks...allowing plenty of time for JCPenny to get the clothes to us. I called Adrian in tears sobbing, our pictures aren't going to turn out, we aren't going to match, my vision is not going to happen, it is going to STINK!!! however for a girl who usually can't find anything to wear in a normal store I sure did well...I found two options and took them home. However I settled for a sweater I found buried in my closet from before Jackson was born, that surprisingly fit. Yea!! for no money spending. I also found Adrian and outfit in his closet....God is good...he really wanted us to have the picture we wanted without spending a dime. love it when that happens...well we did buy Jackson a new sweater. Seriously though, when you don't grow you rarely get new clothes...so it was fun to shop for him. I have to say I saw alot of cute stuff for fall and I was tempted but I didn't...yippppeeee for self control. Our pictures turned out fabulous you can see them at
c-onephoto.com if you look under client you will find our photo shoot. Lee did a great job and we have wonderful choices to choose from. Thanks again Lee for the gift.
Thursday, October 16, 2008
Then I was cleaning up because I have found a nursing student at Goshen college that has been coming to watch Jackson when I go to MOTTS on Thursday mornings. She is going to help some while he is in his cast too. it is nice to know that there is a person with emergency experience watching him and that She will be able to use the experience later as well. it got to be 8:30 when I needed to leave and no one was here...So I continued to look for my cell phone that was MIA and waited...when It hit 8 :45 I started to load Jackson's stuff in the car as well. There are certain things I am willing to blow off and miss but MOTTS has become something that I would move heaven and High water to make it too. that is a story I will save for another day. God really had a plan for my morning. Lindsey called and she had gotten lost and needed directions. She arrived about 9 which was when my group started, but oh well. then I left the house...got to 19 and then remembered that there was road construction, so I decided to try and go around. So I ended up lost on some back country road. Beautiful scenery! but remember I didn't have time for this. I found county road 3 and it sounded familiar to the road I jog over too, but i didn't know for sure...all of a sudden i just felt ok. i am going to be late, and look at what I am driving through. It is gorgeous fall colors and beautiful woods. I would have never seen this if I wouldn't have been late, had road construction to go around, and gotten lost. God is good. I ended up making it to MOTTS in around 20 minutes. which is like 10-15 minutes faster than the what it usually takes. How did that happen? There are alot more little things that happened, but all in all my day has turned around. Great trip to target...do you remember what trips to the store are like without a child...it was alot more peaceful not having a child stretching to the shelves and almost falling out of the cart. then I ran into our home nurse from when Jackson came home from the hospital and scheduled a time for her to come see him all big and grown up. then got home and had a happy baby. Something changed from 8:30 t0 noon, what I am not questioning. I had a first steps appointment and added Speech therapy and got rid of the PT that I wasn't completely happy with. All day in the good and the bad God has taught me to find the good in the situation and to enjoy the moments.
It is amazing right now the changing of colors. I think we need to let God change us too and get rid of the old leaves to make room for new ones. Imagine how beautiful that change would look if we give God the chance to change us. Just something I have been thinking about lately. Enjoy the moments of your week and the beautiful colors around you.
Wednesday, October 15, 2008
then this one makes me laugh. he got so excited he just started screaming...it was totally funny in person.
this face comes out a lot lately...total attitude at 14 months...what do I have to look forward to at 2 and 3...oh my. we will be sure to keep you updated.
Good news at the doc...we have clear ears. whooohooo...we have a bit of a cough and a wicked case of thrush...so we are treating, but neither looks like a hold off for surgery...so we are on for next thursday October 23rd. Life has been so good lately. I just continue to pray that God will protect Jackson and his surgery will go well. I am also praying for strength and patience for Adrian and I too. THings are prepared and we have many ideas on how to modify things like swings and wagons and toys so Jackson can continue to enjoy while in his cast. I feel as ready as we can be and I know God will take care of the rest.
Friday, October 10, 2008
Wednesday, October 08, 2008
So we have been grocery shopping and Jackson likes to help. if you get him to close to the aisle, you better check the shopping cart...you might have some random box in your cart that you have never seen...see he likes to reach and grab, all while trying not to fall out of the cart. it is quite the sight. when we got home the fun didn't end. I set him down in the living room and by the time I had the groceries on the counter and began to unload them into the frig and freezer, Jackson had begun unloading the freezer. He is totally into helping...or should I say emptying. hehe....it is funny. Jackson's benefit was this weekend. And as I promised pictures. here are a few. there were so many people...not sure what pictures we got. This shows the outside...check out that line of people...oh my...it never stopped until they ran out...at least of coffee. It was nuts... then the inside. it was a steady flow through all the auction items. it takes a while to look at 74 items and decide what is more important for you to bid on. Then we also got to meet Jon. Jon lives in Michigan and is an 11 year old little boy that has the same genetic association that Jackson does. It was so encouraging to meet him and his mom. Plus we found out they only live like 10 minutes from our house. We definitely will be getting together soon. it is so fasinating to me to hear about Jon's story. It is also like hearing a slightly different version of our own story. Can you believe it all because of a newspaper article. it is so crazy. once we slept in a little and took naps on Saturday we decided to head to the pumpkin patch. it was so funny to watch how excited jackson got. and of course everything went to his mouth...it was pretty funny...can you see the pumpkin to the right of him in the picture without a stem. there were signs everywhere that said do not pick up by stem. the first thing Jackson did was grab the stem and it just fell off. oooopppppss.......he's cute so he got away with it, no problem.
we got some beautiful mums too..quite cheap i may add. it was fun my mom bought mums too..hopefully they made it back to mn. it was great having my parents here for the week and that they got to see Jackson in prime form, not in a hip cast.
We are now preparing for surgery in two weeks and getting ready for Daddy's busy season. he was gone this week for three days. can't wait to see him tonight. jackson has been pounding on the window saying daddy for the last couple of nights...he is going to be so excited to see him.
we had blood work yesterday that we are still waiting on results of. I am calling now to see what the results were. We are hoping that the antibiotics we have been on for the past three weeks have not done a doosie on our metabolic panel making his kidney work extra hard. of course I am on hold.
we are good to go...everything has remained stable...praise the lord. whoohoo..
hope you all are enjoying your day in on this beautiful fall day of chilly weather and rain. we are...hope the week brightens up a bit...man I love fall. Have a good one.
Monday, October 06, 2008
it was so incredible to witness the ideas of 6 individuals come together in an event that reached so many. I would say at no single time were there less than 30 people at the event and that includes the beginning. See there were so many volunteers it was unreal and without them it never could have run as smoothly as it did. so to all of our friends new and old we THANK YOU from the bottom of our heart for baking, standing all night and shivering in the cold outside. You guys all ROCK.
For those of you that weren't there. The silent auction was amazing. I remembered a conversation that I had had with Alice the week before and she was excited that there had been 33 items donated to the auction. Which is an awesome amount. Well ladies and gentlemen when I arrived at the auction on Friday night I was informed that there were now 74 items that had been donated. People went out of there way to donate to this benefit, people we don't even know and for that we are beyond amazed and very grateful.
on that note: Thank you to our families and friends that put the time, effort and money into this. We have been humbled and blessed in many ways by this event and experience.
I want to take a minute to tell you about some special moments that happened through this event. There was a day a couple of months back that we got a knock on our door it was our neighbor girl telling us that we had a lady looking for our house. This little grey haired lady had a gift for us and expressed her concern as she had read Jackson's article in the paper. I said Thank You but chose not to open the card until I got in the house. It was a gas card for our trips to Indy. Can you believe it a random stranger. God can use everyone.
Then a couple weeks after the article ran I got an email from Alison and Mark from the Elkhart Truth. It was from a lady in Michigan who had read the article and wanted to encourage us. See her 11 year old son has the same genetic association as Jackson does and he is a thriving young boy. Talk about encouragement. That was the most amazing news a mom could here. A success story.
Now for what you have all been waiting for: the benefit raised over 10,000 dollars for our family. We can not Thank you all enough for the money, the prayers, the encouragment that you have all shared with us. So from the bottom of our humbled, grateful hearts we say THANK YOU!!
(have pictures but my computer will not upload them so we will post pictures next time. )